Alone in My Universe

Struggling with an Orphan Disease in an Unsympathetic World

by Danielle Roberts, With Ayaka Nangumo, With Micheal Carroll & With Mike Cookman



Book Details

Language : English
Publication Date : 3/23/2011

Format : E-Book
Dimensions : N/A
Page Count : 344
ISBN : 9781450295949
Format : Softcover
Dimensions : 5.5x8.5
Page Count : 344
ISBN : 9781450295925
Format : Hardcover
Dimensions : 5.5x8.5
Page Count : 344
ISBN : 9781450295932

About the Book

Battling a chronic disease can often be a lonely and frustrating ordeal. It doesn’t have to be. Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly. Based on actual personal experiences, these narratives provide a primer of understanding for others dealing with this chronic, debilitating disease that affects many of the body’s systems. This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low-profile disease. Each patient tells his or her story as it relates to the disease and its complications. Topics include the following: • Handling pre-diagnosis frustration • Dealing with fears of medical treatment and surgery • Managing family issues and work issues • Talking with children • Managing negative energy • Coping with good and bad days • Living life each day With sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.

About the Author

Wayne Brown was diagnosed with acromegaly in 2004 and is the founder of Acromegaly Community, Inc. He serves as a patient advisor to several medical companies. Brown lives in Buffalo, New York, where he works to support people around the world every day. Visit him online at